Patient Involvement

CHIVA works closely with a number of clinical trials and studies to ensure the meaningful involvement of HIV positive young people.  Current involvement includes:

Designability- Bath Institute of Medical Engineering

Members of the CYC have participated in this project designing devices to help medication adherence.  It aims to help adolescents take ownership for their medication interventions, recognising that at this age, adherence to often vital meds falls precipitously.

AALPHI Study

AALPHI is a prospective cohort of two groups of young people: perinatally HIV-infected individuals, who have been followed in childhood through the Collabrative HIV Paediatric Study (CHIPS) and HIV negative individuals , who have a parent with HIV or who are living in the same household as a case (an HIV-infected young person in the study) or have a sibling, friend or partner who is a case. Three interviews will take place over a 5 year period.

The AALPHI study will describe the impact of life-long HIV and long-term antiretroviral therapy (ART) on the following five domains:

  • Neurocognitive function and psychosocial issues
  • Cardiac function 
  • Metabolic function
  • Sexual and reproductive health
  • Growth and body composition

 

 

PENTA-id

CHIVA is involved in various capacities with PENTA-id, with the CHIVA Youth Committee engaging with researchers to develop patient information and to comment on aspects of trials. 

 

 

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